So before June 2014, I was healthy, working and doing all the things I love. Then BAM! I was rushed into hospital with appendicitis, they kept me in that night and took it out first thing the next morning. The pain was UNBEARABLE! So after I woke up from surgery I was obviously still in a lot of pain but I was well looked after and dosed up with strong painkillers. THANK GOD! I was discharged the following day, I was so glad to get out and go home to my own bed.
After 2 weeks I went to see my GP for a check up, I was still exhausted and still in a lot of pain. She told me I had post viral fatigue and that it would go away, I just needed to go home and rest. So another 2 weeks passed and I was still no better, in actual fact I was getting worse. So my husband (fiancé back then) took me back to see my GP and she said it was strange to still be so fatigued and in pain. The pain was in my muscles and starting to affect my joints too. So she referred me to a rheumatologist.
When I had my appointment she was testing me for rheumatoid arthritis. I had bloods taken and physical examination done. She said it wasn’t R.A and that if I didn’t get better in another 4 weeks to go back to my GP.
You guessed it another 4 weeks passed and still no better but worse! Now it was affecting my mobility and daily life. I wasn’t going out unless I really had to and then I was struggling to walk. My GP then referred me to a ME/chronic fatigue clinic. When I was seen by them they diagnosed me with fibromyalgia.
When I was finally given a diagnosis, the time came to give up my job as I could no longer do it. I worked as a support worker which I loved. I really didn’t want to give up work but my health came first. Everyone was so supportive.
From this point I was given so much help and support. I was having to get up with Michael and he was helping me get showered and dressed before he went to work. Which wasn’t ideal for either of us. It was causing me more fatigue and pain but it was affecting Michael too! It wasn’t fair on him but he kept saying ‘I’m doing it because I love you’. He is amazing!
But then my GP was amazing she referred me to a social worker to arrange care. I was seen by physiotherapists and occupational therapists who helped me get the equipment I need.
I eventually started having carers from may 2015. It is such a great help, now I have a carer come to me Monday-Friday in the morning to help me shower, dress and get my breakfast.
I also suffer with colitis which affects me everyday. Its a form of inflammatory bowel disease. It causes pain and frequent visits to the toilet…
I also have brittle asthma which isn’t nice! I have quite a few asthma attacks during a year and I’m on a fair bit of medication! Its a unstable form of asthma which can be made worse by a number of things. Mine is affected by people smoking but not just around me, I also get affected if i can smell smoke on someone. So all my carers know about this and are very careful.
I take a lot of meds for all my illnesses and conditions. Now I am used to living with these daily but it did take some getting used to, as I had to change the way I did everything and accept help.
I now have a wheelchair that I use if I go out which is amazing!!!! At first I didn’t want to use it but then I thought why should I stay indoors and suffer just because I was worried about what people would say. Now my favourite saying is ‘if they don’t like it, don’t look!’
Me and Michael got married on 5th March 2016, it was the best day of my life! It was a challenge for me with all my health issues but everyone helped. The hotel we had the wedding at were amazing and they did everything they could to help me. After the wedding it took me about a week to recover. But the pain was so worth it!
I then fell pregnant in august 2016, this was my first pregnancy. We were over the moon and so were our families. Unfortunately it wasn’t meant to be and I had a miscarriage on 28th October 2016. It was heart breaking for everyone and it took a long time to get our heads round. Now we are focussed on the future and we will get pregnant again when the time is right.
So there you have it guys! That’s my story about how one operation changed my life!
If you know anyone that suffers with any of these conditions offer them support and don’t judge them. Just asking if they need a hand with anything will make such a difference……trust me!
Thanks for reading my story guys!
Be back next Friday with another blog.